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Home / Association Board

Association Board

Dedicated volunteers serving families affected by BBSOAS since 2021.

Angélique Véré
Angélique Véré
President
Alexandra Oliver
Alexandra Oliver
Secretary
Liane Decodts
Liane Decodts
Treasurer
Anne Morin
Anne Morin
Deputy Secretary
David Martinez
David Martinez
Website Administrator
Aurélie Grimard
Aurélie Grimard
TPE Administrator (Therapeutic Patient Education)
Alexis Véré
Alexis Véré
Video Creator
Xavier Aujard
Xavier Aujard
BBSOAS Sports Coach
Nesrine Tiss
Nesrine Tiss
NR2F1 Foundation USA Representative
José Manuel Mesonero Medina
José Manuel Mesonero Medina
Administrator of the Spanish group
Jean-Charles Métayer
Jean-Charles Métayer
Representative of the Greek families
Stéfanie Von Bonin
Stéfanie Von Bonin
Administrator of the German group
Anne Bohyn et Serge Hervens
Anne Bohyn & Serge Hervens
Representatives of the Belgian families
Dr Ivan La Torraca
Dr Ivan La Torraca
Administrator of the Italian group
NR2F1Europe

European association bringing together families affected by BBSOAS (NR2F1 gene). Support, information, mutual aid and research.

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Contact

  • NR2F1 Europe
  • 7 allée de l’Ormeraie, 21490 ORGEUX
  • +33 (0)6 70 96 65 54
  • nr2f1europe@gmail.com
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